Abnormal Hearing Test...the Beginning

So...things never get dull around here. Believe dat! First of all...thank you everyone for the prayers, fasting, texts, kind words, phone calls, thoughts, hugs and emails. We have felt your prayers and love through the Spirit and know that Heavenly Father is mindful of what we are dealing with and that He loves Justin completely.

Justin had a hearing test at school that showed he had loss of hearing in his left ear. We were encouraged to see an Ear Nose and Throat (ENT) doctor ASAP. So, long story short the ENT ordered a CT scan due to hearing loss and the visible bulge of his left eye. Next business day after the CT scan we get a call that Justin has a mass growing that is causing his eye to bulge. The ENT can't say if the mass is affecting his hearing or not but he did say that he and the Radiologist agree that the growth looks benign. I really don't remember much about the conversation after he said benign.

Long story short...when Justin had his CT scan I asked that our Primary Care Physcian (Dr. Sifontes) receive a copy of the report. Dr. Sifontes called me last night and asked that we come in to her office today. She used to be an Oncologist and felt Justin had Histiocytosis which is a disease that eats away organs/bones. Let's just say we had a very emotional night last night.

This morning Dr. Sifontes calls after speaking with a pediatric oncologist (oncologist diagnose and treat cancer) and an orthopedic (bone) specialist. She now believes he doesn't have histiocytosis...but has a bone disease instead. The oncologist requested blood tests and the bone dr. wants an additional MRI ran of Justin's spine. What we know at this point is that Justin may have a chronic bone disease that causes his bones to calcify (harden) and thicken and has a side effect of growing lesions/tumors. The dr. checked Justin over to see if he had any other bone growths on his body and everything was fine except on the left side of Justin's back was shaped different then the right...like it stuck out more on the left side?!!?!?!?hard to explain. So, still we don't know exactly what is going on but Dr. Sifontes feels optimistic that whatever Justin has is treatable and maintainable. 

Dr. Sifontes should be calling within 1-2 days with the blood results. We also have the 3 MRI's scheduled for Tuesday, April 9. The MRI will give the doctors more info about the growth and size of whatever is growing and where they are growing.

We are grateful to have dr. Sifontes working with us and spending so much of her time with Justin. She talked with us for an hour today with an office full of people waiting for her...she really cares about Justin and wants to assist in anyway she can.

We received some good news yesterday that Jason's pay won't be cut 42%. We appreciate all the prayers!

We will update the Blog as we get info. Thank you again for all the support. I appreciate all of you listening to me talk about this...I am usually not as open and have felt relieved in talking about what is happening. I think if I kept things inside I would have a massive explosion or meltdown. So thank you for being there for me and us.