Recovery

Justin was moved out of ICU today. He had a fever so they took some blood but the preliminary results came back looking good so we aren't too worried at this point. Justin had a blood transfusion so u was worried when he got the fever. His fever is under control and he hasn't taken IV pain meds for 6-7 hours. He is amazing. He has been up a lot today. He was just setting next to the window looking outside at the view. He took a shower today and took off his own bandage while he was crying. He is so brave. 

Dr Lemole showed us the scan results and there is a lesion of the tumor is Justin's sinus and possibly more tumor in skull base bone. Dr Lemole said is wasn't positive if there was tumor in the skull base and he had discussed the images with the tumor board and no one knew what it was so it could be tumor and it could be a side effect of the tumor he took out so we will have some scans in a few months to see if there is a change with the skull base. Dr Lemole says the tumors are treatable with radiation. I worry about radiation because NF tumors have a different genetic make-up and are precursors for cancer. So if they use radiation the tumors could come back malignant. A few doctors say we have spoken with say it's okay to use radiation on meningiomas but not on a schwannomas and other doctors have said dont do radiation on either. Schwannomas are the tumors on Justin's accoustic nerves and the meningioma is the tumor dr Lemole removed most of Tuesday. Just another battle we will face down the road. 

Justin is doing very well and we are hoping to be headed home this weekend. I can't get my phone to upload photos so hopefully I will have a pic tomorrow. Thanks for all the support. We feel very blessed to have such a great support system.